After decades in the spotlight as one of the world’s top supermodels,Linda Evangelistahas spent the past five years of her life in hiding.

In anexclusive interview with PEOPLE, the fashion icon, 56, explains for the first time why she waited so long to reveal that she’s been suffering from a rare side effect of CoolSculpting, a fat-freezing body contouring procedure, that she alleges left her “brutally disfigured” and unable to work in the industry she once loved.

“I should not be a burden to my child,” she tells PEOPLE of keeping her condition from those closest to her, including her son, Augie, now 15. “He shouldn’t have to be supporting me. That’s not his job.”

For the full interview with supermodel Linda Evangelista, listen to today’s special episode ofPEOPLE Every Day, the daily podcast from PEOPLE:

Instead, she suffered privately in near seclusion. “No one sees me,” she says, adding that for a long time she would only leave her New York City home for school events with Augie (whose father is Francois-Henri Pinault) or to walk her dog.

“[Augie] used to say, ‘Mommy, do you remember when you used to be fun?’ " Evangelista says. “‘Remember when you used to laugh all the time? How come you don’t laugh anymore?’ I hate what this has done to my relationship with him.”

Linda Evangelista Rollout

She adds that while she’s always instilled in her son that outward appearances do not equate to real beauty, she can’t seem to accept that lesson when it comes to taking inventory of her own self-worth.

“It is very important for me to raise him knowing that he is beautiful and knowing that everyone is beautiful,” she says, adding through tears, “It’s so messed up that I truly believe that except it doesn’t pertain to me.”

“I told [Augie] he might be hearing some things, and he said he didn’t care, that he’s there for me,” she says.

Linda Evangelista

“I consider it a safe, effective treatment that’s worthwhile and has a high patient — satisfaction rate,” says Dr. Sue Ellen Cox, a dermatologist in Chapel Hill, N.C., who has conducted clinical trials on behalf of CoolSculpting and says she has successfully performed the procedure thousands of times.

But there can also be serious and long-lasting side effects, ranging from “dents” in the skin to a rare condition that affects less than 1 percent of patients called paradoxical adipose hyperplasia (PAH), where the freezing process causes the affected fatty tissue to thicken and expand.

Linda Evangelista Rollout

In June 2016, Evangelista’s doctor diagnosed her with PAH.

“He told me no amount of dieting, and no amount of exercise was ever going to fix it,” she recalls.

Evangelista filed a lawsuit in September suing CoolSculpting’s parent company, Zeltiq Aesthetics Inc., for $50 million in damages, alleging that she’s been unable to work since the treatments.

In a statement toPeople,a representative for CoolSculpting says the procedure “has been well studied with more than 100 scientific publications and more than 11 million treatments performed worldwide” and added that rare side effects like PAH “continue to be well-documented in the CoolSculpting information for patients and health care providers.”

While her case winds through the legal system, Evangelista is trying to reclaim her life — to even find the courage to cook dinner for close friends.

“I hope I can shed myself of some of the shame and help other people who are in the same situation as me,” she says. “That’s my goal.”

source: people.com